Samuel was 9 when he was diagnosed. 5 months later he died. An aggressive, painful cancer that had not been seen before took him far to early.
Through the pain of the chemo, side effects, collapsed lung, blood clots and too much to list Samuel saw past his own situation and wanted to help the other kids on the ward, many of them going through similar ordeals.
This is how Samuel's Charity began - one young boy, terminally ill, with a heart bigger than a house.
4 years on and his charity is growing and helping more and more sick kids going through serious and terminal conditions in local hospitals around the country.
We are helping St George's hospital in London, Bath Royal United Hospital and St Perter's hospital in Chertsey as well as Milton Keynes hospital. We help the children's wards at these hospitals with equipment to reduce pain, Wi-Fi, computers and Tablets, games, sensory equipment and much more.
What this does is bring some hope, some fun and some relief from the constant pain and fear that so many of these kids go through each day. Samuel saw this, went through this, and so knew what was needed to make a difference each day. It may not be much to us, but to a child going through hell every day it means so much.
On the 7th July Samuel's mother, Tillie, and Father Martin (myself), will be doing Tough Mudder. It is the first time for Tillie and it is very special as the only fundraising event Samuel knew about was Tough Mudder and this is the closest to his birthday, 10th August, we could find.
It will be tough to get round the course but the really tough part is doing it without Samuel being there. Each step will be with him on our mind but nothing on the course can match the pain of losing a child.
As a parent who has lost a child, and from speaking with many who have, or are close to losing a child, the pain never goes, we never get over it - we learn to live daily with it.
Knowing that Samuel's legacy brings relief and Makes Smiles for many kids in hospital or going through treatment is something I know he wanted and something we will keep alive.
Press release distributed by Pressat on behalf of Samuel's Charity, on Thursday 28 June, 2018. For more information subscribe and follow http://www.pressat.co.uk/